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The Wasie Foundation Epidermolysis Bullosa Research Fund

A personal campaign sponsored by Ashley Lawson

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Epidermolysis bullosa (EB) is the worst disease you've never heard of. A rare disease that causes fragile skin that easily blisters, tears and sheds off, EB leads to severe pain, disfigurement and wounds that never heal. Until recently, the only treatments were bandages, antibiotics, and pain management. But at the University of Minnesota, Dr. Jakub Tolar, Dean of the Medical School, and his incredible team are developing some of the most advanced EB treatments in the world—and even more importantly, working to close in on a cure.

One of these incredible new treatments is epidermal skin grafting with the CelluTomeTM system. This specific treatment allows healthy skin to be harvested from a prior bone marrow donor and applied as a living bandage to help heal skin wounds. Remarkably, this is done without sedation or anesthesia in the outpatient clinic setting. This new treatment will revolutionize care and treatment for children with EB. At present, CelluTomeTM epidermal skin grafting is only available to children who have received a bone marrow transplant, but the hope is to make this specialized treatment available to all children with EB.

In celebration of Rare Disease Day on February 29, the Wasie Foundation is providing a dollar-for-dollar match to increase research funding for this critical treatment. Consider a donation to power EB research and double your impact today. With your support, we will create new treatments for all children facing EB and change outcomes for patients around the world.

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